Yes, it is great to catch these things early, but you are correct in wanting to know the entire story now. Cancer in the mouth is not like cancer on the skin where a tiny bit of it might not be as devastating. My superficially invasive cancer was in reality NOT, and all the labeling in the world did not change that. It was supposed to be early and non-invasive as well. Probably it won't happen to you, but I never had a larger patch of leukoplakia either. Everyone's different.

Second opinions are great, even third ones when it comes to cancer. Sounds like you are on the right track.
Best,
Anne


SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021