"OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Hi again Laura, Thank you for adding the signature. You are already getting great advice both here and on your more recent thread. I know your area well but I am not sure if Gosford Hospital is a Comprehensive Cancer Centre facility. While reading here you will often see the necessity to have a multidisciplinary team and be treated at a CCC. I am sending you a PM (Personal Message) with a link that goes in to more detail. It is actually from the Northern Sydney and Central Coast Health Service. I went to Westmead which also is a CCC hospital. I see so many similarities between you and Karen , another OCF member/carer (and friend) with experience at the RNS. She is also an ex nurse and will be able to help not only with all the technical stuff but also with the local knowledge that is also be very important. I will contact her and let her know you have joined and I know she will post when she can. I will also PM you her link as you may want to do some reading in the meantime. Best wishes to you and your husband. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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