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#14314 06-30-2003 04:24 PM | Joined: Jun 2003 Posts: 5 Member | | Member Joined: Jun 2003 Posts: 5 | Hi, I am new here too. I am surprised to see so many people here dealing with what I have been dealing with for years. I found this site thru MD Anderson. Ok... for my history I am into my 8th year of remission for SSC of the base of the tongue. I was 39 at the time of DX.. It has spread bilaterally to the lymph nodes. It was a t-3 and N-2 and I was told it was a class 4 andhad little chance of survival. They wanted to do tongue removal and neck ressection and I said no at first and my oncologist said we could always do that later.. so I had three cycles of inpatient cystplatnum and 5FU and then had 49 radiation treatments. I have alot of side effects of the treatment.. but all in all .. everything was well until the last three months when I lost my voice. My normal ENT missed a tumor but I went to MD Anderson and they removed a two inch by one inch section of my laynx. I am unable to talk right now and don't really know if and or when I will talk.. that is not my concern. I feel lucky I went there and also feel lucky that is wasn't a spread of the original cancer. My question for any of you that may know is .. I was told this is a radiation nodule. Can any of you give me any more info on that? Is that another squaomus cell cancer? The surgeon has me returning in a month for a re check but I of course am trying to find out all I can now. They say I am not going to have any chemo or need further surgery unless I get another one. Anyone else had one of these? Thanks.. sorry to say hello and ask a question all at the same time. The few posts I have read so far have really inspired me to what a strong group of people this is. THanks | | |
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