I don't now if I'm replying in the right place but found you mentioned burning tongue. My first attempt at chemo was Erbitux which almost killed me. Had a horrible alergic reation that sent me from the cancer clinic by ambulance where my heart stopped to the hospital Memorial weekend 2011. After daily radiation during June - July 20 & Carboplatin weekly I am still stuggling with burning tongue. Shortly after treatment I was diagnosed with Thrush. After treatment (about 1 month) I was eating small amounts of some normal food, even pizza! Then my mouth started burning so bad, I ended up only being able to eat partially frozen malts made with strawberry Ensure Plus base & lots of ice cream. This has been going on for about 2 months. Chemo, radiation & surgeon doctors all say this is normal & keep uping my pain mediation which doesn't seem to be working. I am currently on 400 mg Fentanyl, 3600mg daily Gabapentin which they say is for nerve pain in my tongue. I use Lidocaine & magic mouthwash & none of it realy seams to help. After my wife called over the weekend & talked to the medical oncologist on call (not my normal one), she said she thought I had a fungal infection which is causing the burning & that I shouldn't be getting worse at this stage instead of getting better. Anybody have any experiance like this?

Last edited by ChristineB; 11-20-2011 09:03 PM. Reason: moved to its own thread
SSC T1N1, Moderate discection of left tongue 9/9/10, removed lymph nodes, no chemo or radiation. 2 clear PET scans then cancer returned T3 (high 2) 3/2011. Lymph node byopsy clear. 6 weeks radation June 6-July 20. Weekly Carboplatin.