Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Sorry noone replied sooner and I was locked out while they installed a new hard drive. I think you got lost in between about 6 new intros on the same day.
The one thing I would ask about is preserving your saliva glands. This is one of the major long term side effects that will last for the rest of your very long life and effect you every day. Are they giving you some medication to help preserve these? Can they possibly make a stent to protect them?
Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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