Oh Jan! I wish I could wave a magic wand and make it all happy for you, but all I can tell you is that it will get better. Honestly and truly, it WILL get better. Your post has that unmistakable sound of being really, really tired of it all, and there isn't one of us here, patient or care giver, who cannot relate. There was recently a discussion of constipation, and there are many hours of reading about the care and feeding of PEG tubes, so I invite you to use the search feature at the top of the page to possibly find some information that will be helpful to you. Hang in there and please know that you can always come here to find people who understand exactly.
Joanna