How do you know which doctor to go to when you are having problems after completing treatments? John is 2 years out of treatments. He never complains about the little aches, pains and chronic dry mouth that he has. I know him so well and know when something is bothering him. He has seemed distracted the past few days. Last night I finally confronted him and asked him if there is something bothering him. He told me that for the past three weeks his gum and jaw have been bothering him. It is even painful when he eats soft foods. He told me that he called our dentist and went to see him last week. He did an x-ray of the area and an exam and couldn't see or feel anything. He told him if the pain was still there in two weeks to call him back. John said the pain radiates into his jaw and his gum is sore. He doesn't feel any better since he saw the dentist last week.

I know that this could be radiation damage so I'm not hitting the panic button yet. Should he see the radiation oncologist or ENT? He had an exam with the ENT September 6th. He scoped him and felt around his neck etc. and said everything looked good. I just hate having this uneasy feeling in my stomach. I guess I'm just confused which doctor to pursue this with since he has so many doctors.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2