I'm going to leave the name out, but this is one AMAZING guy who does not let having a PEG tube for over a dozen years slow him down at all. Travel requires so much more planning with a PEG tube since even a week's worth of Jevity is two cases that weigh 34 to 40 pounds (depending on how I position them on my bathroom scale)So you have to shop for Ensure wherever you go and none of the commercial formulae have any fiber so there are bowel issues. Anyway here is his story:
[quote]I got very excited about the idea of blending powder instead of cans of liquid after reading these posts (and couldn't believe that I hadn't thought of this before). For 14 years I've been carrying cans (3 Jevity, 3 Ensure Plus per day) on domestic and foreign travel and it's always a weight
and space inconvenience if the trip is more than a couple of days (on a one-month business trip to Turkmenistan I had 180 cans in two extra suitcases, with the attendant excess baggage charges and long explanations at security and customs).
But my original excitement has faded after learning that although Ensure is available in powder form, Jevity is not, at least in the USA. The Abbott websites show the powdered form is available in Singapore, Thailand and Malaysia, but the customer service folks for the USA couldn't explain why it
wasn't available here (they thought it was a good idea and would pass it on-- sure). So maybe I"ll try the powdered Ensure and at least cut my extra weights in half.
On a reassuring note for your African travel, I've never had any unsolvable(i was going to say insoluble, but that would be a bad pun) problem with cans in my checked luggage, although if I'm going somewhere strange I do have a letter from my physician (also translated into whatever language I
think might be useful) to contend with customs at the arriving city, and you can be sure that TSA will have opened your baggage and inspected the contents -- so I always pack a laminated sign that says "Medical Necessity
-- Feeding supplies for Stomach Tube Nutrition"). I have a similar sign that I have in a large Ziplok bag in which I carry two or four cans in my carry-on backpack, and sometimes that delays me a few minutes while they swab the cans for explosives, depending on the TSA people on duty -- but in
the end they have always passed me through. Same holds true for foreign security inspections, although sometimes it takes a bit longer while they try to figure out what the cans are for.
Isn't tube feeding fun! Good luck on your travels. [/quote]
He's a GREAT guy who has answered my emails and contributes to g tube list serves and BD forums and a real inspiration on how to not let a feeding tube hold you back.
Charm