Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Beth, welcome to OCF! You have come to the right place for support and info to get thru this rough time. Treatments are not easy for anyone, the patient, caregiver, or the family. Its especially difficult when you have young children and are far from home. Many members seek out counselors for the children so they can handle what is happening to their parents. One of our members has written a children's book called "Talk for Hope". It helps children deal with a parents illness. Let me know if you are interested.
With nausea, do your best to keep the medications going even if your husband shows no signs of nausea. Once you get behind its nearly impossible to catch up and get ahead of the nausea. Nutrition and hydration are difficult enough but when you have to put back everything that came out its a darn hard thing to do. The warm water and baking soda mixture will help with a ore mouth so its a good plan to rinse several times per day. Also do stretching exercises daily to prevent trismus from setting in.
Im sure you are a bit overwhelmed with everything you have on your plate right now. Its not easy seeing your husband go thru this plus be his caregiver and take care of the children too. Make certain that every single day you take a few minutes just for you to clear your head. Go for a walk alone or take a drive. Take care of yourself so you can care for everyone else. Im glad you have found OCF so we can help you.
Best wishes with everything! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |