Hi Marie,

Welcome to the forum. I'm very sorry you have joined our ranks, but glad you found us. I'm sure you will find a lot of good info and help here. It would be helpful if you could give us a few more details. You said you were just diagnosed 2 weeks ago. You must have had the glossectomy almost right away if you are home already. Was there any other surgery performed at the same time, neck dissection? free flap? Did you have a nasal feeding tube or tracheotomy?

In the meantime, I would suggest getting some "magic mouthwash". It is a concoction the pharmacist can make up that numbs your mouth, so you can eat with less pain. Also, you need to tell the dr. you are having so much pain. He should give you a prescription for a stronger pain med. And don't let them feed you a line about pain meds being addictive. Yes, they can be very addictive, but they are necessary if you are to have any relief. The possible addiction can be dealt with later. The RAD oncolgist was reluctant to give my daughter stronger meds and she suffered quite a lot because of it.

I'm sure some other people will respond to your questions. Hang in there. It will get better.
Take care,
Rosie


Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.