Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | There are still a lot of things that I can't taste even after two years, and some things that I can taste just don't taste good. I used to love dark chocolate, but that doesn't taste good to me anymore. Coffee was one of the first things I was able to taste again, and I have always loved coffee, so that's good. I just don't enjoy eating much. I eat because I know that I have to eat. I make a milkshake everyday with a bottle of Ensure Plus (Kroger makes a similar one called Fortify that is quite a bit cheaper.), a scoop of ice cream and a banana. Sometimes I use another fruit like stawberries or peaches when they are in season. Eggs work, as do custards, and some seafood.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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