Thanks for sharing, Connie. I guess it's going to be a long five years from inital diagnosis to cure. Supposedly, with my initial surgery and staging, I have an 80%+ cure rate. So, I am wondering if it is just my luck to have something "new" on my CT just 4 months post-op. I know what it's like sitting on pins and needles. I'm sorry you are going through that right now. I'm also sorry if my posts have dug up some deep-seated anxiety. Just remember that each year your scans are clear, the chances of it recurring are less and less. When I was biopsied, I knew it what it was deep down. I am a health professional and sometimes that's worse when you know too much. So, pending my biopsy and for the time thereafter, I went to the OCF website and it terrified me. It was so overwhelming and I felt like I already had a death sentence. When I finally got my results, my worst fears were confirmed. The oral surgeon said it could be a list of 20 things and cancer was on the bottom of the list, yet it was cancer. It was only when I saw my surgeon the very next day that I felt somewhat better when he put his hand on my shoulder and said "This is very treatable.". After all was done with my surgery/hospitalization, I met with my medical oncologist again. She said there's a small chance it could come back, but if it does, it's very treatable. She did not recommend rad/chemo since my nodes were clear.

So, here I am...feels like a bad dream. I wish I could wake up.

I wish for you to have clean scans coming forth. Let's keep each other posted of the plans/results.

Take good care,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!