Well, praise be! I thought I surely was the only person with this continuing plague. Never before in my life did I have problems with it, well maybe slightly for a couple of days after childbirth, but that's it.

The thing is I did not take pain meds to speak of. All I had that was constipating was Zofran which I got IV weekly with Cisplatin, and what I took orally following (which I stopped doing), thus spent some miserable days feeling sick and consipated. Oh, yes, and iron, always "the devil" to me. But I thought it would be over after treatment. Not so. There was a brief time when I thought I was getting back to normal, about a month after treatment, I'd have one bad day and the rest would be fairly normal, but that gradually got worse again. About that time I found that my thyroid was not working really well, which I do think it was not working really well before radiation. I had hopes this was the cause of my constipation, and it might well be, but am not sure.

I had a colonoscopy, yes I am always at least hovering at low normal for hemoglobin, so docs were really urging me to get it done. Everything checked out great, except for a "twisty bowel" which I am not sure I had at least to that extent before treatment. I am supposed to take Miralax every day, but have done like you have, cut back when I think it is too much, then been sorry . . . hate it. My gastroenterologist, who has experienced cancer, said, "you have to give it more time," so there you go.

I am going to believe that it will improve. You also can eat too much fiber and that will constipate you--never realized that before.

Thanks for bringing up this not very fun to talk about subject, at least for me.
Anne



SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021