OP  "OCF Canuck, across the pond" Senior Member (100+ posts)
Joined: Jun 2010 Posts: 153 | Hi Mike,
I think it was just a fluke that they didn't mention the hearing loss. There are many potential side effects to these treatments, and everybody reacts uniquely. My big gripe was that the possibility of *late onset* side effects wasn't mentioned. My neuropathy and hearing concerns didn't come on until months post treatment, and caused me quite a lot of distress at the time.
I can say, however, that now, over a year out, these seem to have abated and for the most part I feel good. Dry-er mouth is annoying, and neck muscle spasm/cramping is annoying, but overall I feel I'm 95% back and pretty well off.
Cheers,
-Seth
47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.
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