Hello all, I have not posted anything forn quite some time. Things havent changed 31/2 years out still lots of pain but I am living with it. Still have the peg tube and probably will forever, I have made a decision to start weaning myself off some of the drugs I am on, starting with Gaberpentin, just to see how I go. Have not discussed this with my doc yet, but will on my next visit next week.

SCC Base of tongue stage 4. 10 hour operation Radical neck dissection and hemiglossectomy 23/10/06 35 Rad treatments and 3 high dose Cistplatin Dec 06 - Feb 07. Ex casual smoker 6 to 8 a day - casual drinker. Very fit and diet conscious.