Leonor,

I can't really add anything more than Joanna, Julie, and Rosie have said. They know what they are talking about. Just know the OCF family is here for you and will help in any way we can.
I always say the careguver has as hard if not harder job than the patient. And what Rosie said about us making it harder on ya'll sure hits home (ouch!)
You take the kind thoughts and well wishes from everyone here and hold them close, then you'll know you aren't alone.

Take care,
Dinah