Judy,
My diagnosis is similar to your husband's. Surgery was not an option so we did radiation with concurrent chemo. The chemo was given in small doses and caused very little discomfort and no hair loss...so don't write off chemo. Some studies show that it really helps shrink the tumors along with radiation. My problems have resulted from radiation, not the chemo , which has long since passed. Putting in the PEG is a very simple procedure and eating with it is no problem. Obviously it is better to eat if one can eat, but if you cannot, the tube is a wonderful alternative.

Kim,
The CTscan showed a little something in one of my neck nodes. I will have ultrasound and perhaps needle biopsy next week. I am hoping that it is only a little scar tissue. The doctors cannot feel it manually. Last week I did meet with the speech/swallow therapist. Bottom line: I am still very sore and swollen from the radiation, so she was pretty lenient with me. We did schedule a barium swallow, contingent upon being a little more healed.
Thanks for asking.
I hope that everyone is doing well.

Danny G.