Thanks Sandy, we do have alot going on at the moment. But we'll get through it, one bit at a time as always. I made a mistake in my previous post, it should read 22 months cancer free. Can't lose that 2 months, they count too much in this battle. Hopefully everything will work out ok for us with our move and mostly with Steve's jaw. We can only try our best but yes the jaw issue and lack of medical care is extremely frustrating. Hopefully when we move onto a different hospital things will finally get done. I'm just so thankful he's not in pain. That would be miserable for him.

As for starting to live again, it's baby steps but its going forward so that's all that matters. I don't think many people understand us moving as we won't have any family support up there but we have many, many caring friends that are there if we need them and I always have you guys. I'm constantly being reminded of the what if's at the moment. I know it's just from caring people who worry about us but we can't spend our life being scared of the what if's. For some reason all I hear is what if it comes back, but I'd prefer our what if to be what if it never comes back. Either way we intend to start living life, not just sitting back waiting for it. If I've learnt one thing from this its that happiness is key. Living our life to make us happy, not other people. So that's what we are doing.

Anyway just lots of frustrations lately with medical and people. People that care but just never get it. Somethings in life only us members of this exclusive club ever get. No matter how much you try to make others understand it just never quite gets through. Anyway hope you and J are going ok. Take care my lovely friend xxx


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.