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#13543 10-15-2002 03:10 PM | Joined: Mar 2002 Posts: 4,918 Likes: 71 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 71 | I hope that you will get more posts regarding your eating questions from our other members, but I would just like to offer you this bit of advice. I find it unacceptable that your treating doctor has not identified the site of the primary tumor. This isn't right. Nothing microscopic metastasizes to the cervical nodes. I wouldn't want my future hanging on the phrase the "radiation probably got it all". In my personal opinion, based on what I have seen pass through these boards and elsewhere, you need a second opinion related to this issue of an undisclosed primary. You have not mentioned what test were done pre-treatment, but a complete head and neck work up including MRI's and a chest CT would be the minimum. If these don't turn up the primary, I would be thinking about a PET scan. Don't be afraid to ask lots of questions. Any competent doctor will be open to you asking about the missing primary and wanting a second opinion.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
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