This has been a very interesting thread. For a long time I have been "chewing" on the left side of my tongue if I fall asleep in a chair. I have definatley gotten a small calis there. But...my cancer was not only HPV positive but was p16 driven, meaning not only did I have the HPV virus at one point but that it "caused" my cancer. It's been frusterating thinking about all the ways I've neglected my health with drugs, booze, butts, not eating well and only speratically excersizing. And then to think truth be told that my cancer was sexually transmitted. It stands to reason that (although I have quit smoking) I have not really been gung ho about changing my lifestyle (except for not wasting time anymore and making the most out of every day)but my sex drive is GONE. Sucks!!! I wonder if given the fact that I have contracted this SCC from the HPV how that effects any chances I might have of getting more cancer from the irritation on my tongue. Probably doesn't change a thing. I'll be down at Tufts for a head and neck cancer lecture by my surgeon Richard Wein and I will be sure to ask.


Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG