My tumor board was held today. Due to some close margins after my first tongue resection, they recommended that I have a second resection with a tissue graft from my thigh. The surgeon said that the graft would keep my tongue from being fused to the floor of my mouth. I am really nervous about this procedure. I'm not sure exactly what bothers me about it. I would love to hear from anyone who has had a similar operation. I'm wondering what the recovery is like (I will be having a bilateral neck dissection at the same time) and if it always feels like there is something foreign in the mouth.
I also owe all of the members who encouraged me to get a second opinion at a CCC a big thank you. Not only did the pathologists determine that the margins from my original tongue resection were smaller than reported, they also found that there was no perineural invasion (the original pathology report said there was). It scares me to think that I could have gone forward with a treatment plan that was based on faulty information. I am so grateful for this forum and that people took the time to nudge me in the right direction.
Last edited by msmac; 05-25-2011 09:42 PM. Reason: typos
Tracy - 33 at diagnosis SCC right ventral tongue Dx 4/11. T1N2M0 1st resection 5/11. Bilateral neck dissection: 2 pos nodes 2nd resection w/graft 6/11. Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11. 3 month MRI and PET/CT all clear. 6, 9, 12 and 24 month post treatment MRIs all clear. |