I agree with Charm 100%! No information is given or choices offered. As I've said in my own string I just discovered here on this forum that there is something called a Mick-Kee button that I am very interested in getting if I can. Why didn't the docs discuss my options before they gave me my PEG? In fact this is the third time I've had a PEG and no one has ever told me there's any other way to go!

Communication and information. That's what we want. After all it is our body.

Stage 2 SCC right base of tongue. 7 weeks radiation & chemo with erbitux. Peg tube. Concluded radiation treatments 5.7.09. Two recurrences, two surgeries. Most recent, a substantial glossectomy, 3/25/11. PEG tube. Minimal swallowing ability, but working on it.