Through a strange series of events, I've been invited to speak at a national medical conference about being a patient with a feeding tube. They want to know about the experience, my problems, what I wish I had known, what could have been easier, etc.

I have my own experiences to draw on, but I'd love to hear y'all's opinion. If you had 15 minutes to talk to 1000 doctors about feeding tubes, what would you say?

CB
Stage 4 sarcoma, base of tongue
Cisplatin, Radiation, Dissection
4 years since dx


Age 46; SCC BOT T3N1M0l dx 9/06
Cisplatin x3; radiation x42
Completed tx 10/31; Selective neck dissection 12/06