Your experience sounds really positive, Jayne -- that's terrific! Getting used to the mask can be hard, but it sounds like it's not too bad for you. Great. I, too, only had mouth and nose radiated, so no PEG. We're lucky there.

Sores may result from the radiation as well as the chemo -- you'll just have to see how you respond (it's different for everyone). I ended up drinking smoothies daily during and after those weeks of radiation -- eating became hard when the sores got bad. But pain meds helped a lot, as did topical gel.

Good luck with all of it! Keep up the positivity!


Chrissy

Stage 2 SCC upper right palate
Hemi-palatectomy and maxillectomy 5/28/09
Six teeth gone
IMRT x30 starts July 13. Completed 8/26/09
Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.