Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I would agree witth you that you are indeed fortunate. But you were the observant one not the Dr. I too almost had to kiss rear to get someone to listen to me and do a biopsy. I have lived the past 4 yrs with after affects and wonder what I would be like had they listened. Good job marks for you and I pray you will be fine soon. With no rads or chemo, maybe you will return to normal soon. I have to spell my last name because I in no way say it anymore. I even hate to talk as it makes pain come running. But I am still alive.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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