OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | My RO said he thinks it is just lymphedema, yet again another stinking side effect of radiation. However, he did say that he wants me to watch it. I see my ENT in two weeks so that will give us time to know if it is anything to worry about. He did say my tongue looks better than he has seen in the past, but has a lot of scar tissue and will be painful. UGH. So we wait an see what this swelling in my neck does for the next two weeks. At this point I am not due to go back top him for three months and will also have a PET scan in three months. So I had good news yesterday.
By the way my son has been complaining of his lip hurting. I looked in his mouth with a flashlight and he has an ulcer looking thing in the crease of his top lip. it looks really nasty. I started freaking out. I will be watching that, and hoping it goes away in a week.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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