OP Senior Member (100+ posts) Joined: Feb 2005 Posts: 118 Likes: 1 | My PEG is in place and I am using a syringe with Jevity 1.5. All is going well ~ my body is quite pleased to have nutrition and hydration!
Charm, I do have a Therabite and it is a great device. Tongue depressors have also worked well for me. The Oley Foundation is terrific for guidance and ideas from members. Like OCF Oley shows us that "one size does not fit all." What works for one may not work well for another, but there are lots of suggestions from those who are walking the enteral feeding path.
Christine, thanks for the information about the trial. The closest location is in the mid-West, but it sounds like a good trial. I will have speech therapy and Vita Stim here in the Phoenix area.
Marianne, make sure your HBO doctor or oral surgeon/ENT surgeon is supportive of your use of a Therabite or tongue depressors to increase your mouth opening. My docs did not want me to stretch my mouth until my osteoradionecrosis had improved. When a pan X-ray showed improvement I began stretching again.
Be well. Zenda 12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.
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