Zenda, Im sorry you have failed the swallow tests and will again be using the tube. I have always used the feeding pump. I am unable to tolerate my feedings with the bolus or syringe methods. Ive also gone thru several different formulas as I had trouble tolerating a few of the more common ones. I have had success with two-cal 560 calorie and Implact with fiber, both are by prescription. I used to supplement with Carnation very high calorie. I would purchase that thru the Amazon link on the forum pages. That gives OCF a small kickback on any Amazon purchases.

There is a free Vita Stim swallowing study going on. Since this originally posted by Brian back in Oct 2010, there have been more hospitals added. So maybe this would help you.

[quote=Brian Hill]There is a swallowing trial going on at several institutions, and they primary investigators have asked OCF if we have anyone who might be interested in participating. Here is the information and contacts.

Boston University Medical center is currently conducting a multi-site (VA Boston Healthcare, Beth Isreal Deconess Medical Center, Lahey Clinic, Brigham and Women�s Hospital, Dana Farber Cancer Institute, New York University School of Medicine, Lenox Hill Hospital, Beth Isreal Hospital New York, Northwestern University, University of Wisconsin, Greater Baltimore Medical Center, and J. Phillip Citta Regional Cancer Center) NIH/NCI funded clinical trial entitled, �Efficacy of Electrical Stimulation for Dysphagia in Head and Neck Cancer Patients.� We are currently enrolling Head/Neck cancer survivors at least 3 months post-radiation treatment suffering from swallowing problems (known as dysphagia). Interested people should contact me for more information, or visit our trial website estimclinicaltrial.com. The clinical trial is 4 months long and includes a home-program for a new approach to therapy for swallowing problems.

Nicole Johnson
Regional Recruitment Coordinator
Boston University Medical Center
Department of Otolaryngology
820 Harrison Avenue, FGH
Boston, MA 02118
p. 617.414.1761
f. 617.638.7965
e. [email protected] [/quote]

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile