Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | As I am reading this thread today, I suddenly realized this is the 10th anniversary of my last radiation treatment. How happy I was. Over at last. No more getting up at 7:00 am to get strapped to a table at 8:30. I slept in as usual. I had arranged this early am schedule so I could continue to work during radiation. Day 9, I went down for the count.
My sister had come up on Thanksgiving with bag of groceries of things she hoped I could eat, most of which were off the menu for another two months, but she tried. Her new boyfriend was taking her to a fine French restaurant, she would order her usual salmon, no sauce (could we swap places please? I think I could find food I can eat). My Thanksgving meal that year was coffee and butter pecan Ensure Plus.
There was no oral cancer foundation to get me through this. I had never even heard of oral cancer before I was diagnosed. I had no idea I was supposed to sick for several weeks after radiation nor did anyone tell me this. My doctors were very positive that that they gotten it under control so I let them worry about a reoccurence rather than me. I was seeing them so often that if there was problem, it would be caught early.
Yes I hit another bump in the road 4 years out which cost me my voice box and am now a total laryngectomee but that didn't alter my life very much. Actually it allowed me to eat more.
I want to thank Brian for this marlvelous web site. Having gone though this twice without any kind of support, I truly know how important this site is to others which is precisely why he founded it.
I hope everyone had a Happy Thanksgving. Chin up, you can do this.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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