Brian, thanks for quick response. Yes it is Recurrent Respiratory Pappillomatosis.
It is confined to the larynx area. I've had it four years. At first the paps would come back about twice a year. My ENT that took them out sent me to UNiversity Hospital to their ENT clinic because he was not helping meThe doctor took out more ,pretty much same place on the tip of the vocal cord. After the 6th surgery it was confirmed HPV16 (very high risk as you know) pappilloma. The polyp is just one and surgeries have increased now to every two months. It was just confirmed yesterday Squamous cell. I used to get pretty clear until the last year. There is major webbing going on in the vocal area and my voice is shot. The last polyp was sitting right between the vocal cord preventing any vibration and with the web going on I could not talk with out an amplifier to magnify my whisper. The pap has always been in the same place. They use cold steel during surgery and as of now I don't believe it has gotten into my lungs. The Ct scan showed no advancement into the lymph nodes but maybe some connection to or the term she used was possible anterior invasion of the cartilage (what ever that means). I am doing a lot of research on this so I can weigh my options. Michael Green that runs the RRPF.org website is also trying to find some answer to my questions. Thanks Steve Hurlock


SCC of larynx,2/1/2011 surgery 16 times to remove papilloma on vocal cords,started TOMO rad treatment 4/11.2011 T2N0M0 possible invasion onto cartilage tissue Cancer back 6/2012. Polyp removed Came back spindle cell carcenoma 6/22/12