Since we don't get people with RRP here are a rule, please confirm that you are referring to Recurrent Respiratory Papillomatosis.

I am way out of my league here, but to find an HPV16 involved RRP patient is very rare (somewhere around 2% of cases I think) in my understanding, as this is almost exclusively the realm of HPV 6 and 11. So before I suggest someone/place for you to talk to, would you mind answering a couple of questions?

Are these papillomas recurring always in the same anatomical site or are they in multiple sites? Are they all laryngeal? Are these surgeries to remove a singular papilloma or a group of them, and when removed, are they clearing/excising the papilloma completely, or are they just trying to maintain airway? Is your total history with RRP 4 years?

Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.