I apologize in advance for this long introduction. I am new to post, but definitely not new to this forum. I have been reading people's stories for the past 6 mos and have learned so much! I can't explain everything in doctor terms, but can do my best from what i have gathered.
I am caregiver to brother in law Gary, age 35. Pittsburgh, Pennsylvania
Wife- has to be back where they live to work, Washington State (miles apart from wife is one obstacle)
DX 2006 with SCC on R Cheek, Surgery then radiation.
Feb 2010 recurrence, 9 hour surgery to remove tumor, some bone shaved from Jaw. Recovers enough to be able to go back home to Washington.
April 2010- New tumor appears at corner right above lip. Another surgery to remove tumor, then radiation and chemo all summer.
He did so well over the summer. Stayed active, walked the dog, enjoyed time with my husband.
August 2010 went back home to Washington after he completed treatment.
Nov 2010- Back AGAIN! 23 Hour surgery to remove left side of jaw, bone from leg to replace jaw. Free Flap. One week later, had to have new bone removed due to complication. (numerous lymph-nodes removed, a couple cancerous)
He came home with us to start recovering, seemed to be doing ok, but then WHAM...TUMORS started showing up almost daily on his face and neck. These are visible tumors, some that bleed.
Doctors this time says he's terminal, there is nothing more to do. They started him on Carboplatin,
Erbitux and 5FU to try and slow it down a little. Starts Radiation today to try and shrink HUGE tumor above collar bone for pain relief. So far, no metastasis to lungs. Is it only a matter of time? If they gave him a time frame, he hasn't told us.
We are sooo devastated as this is happening so fast. Is he really dying at our house. So sad.