Thanks, guys for your responses. I have seen a speech therapist, but other than doing tongue-stretching exercises, there's litle that can be done. She did refer me to a specialist, however that she said could build a mouth insert to lower the roof of my mouth and could possibly help both my swallowing and eating abilities. Two minor problems with this however; 1)The prophyllactic will cost me around $5k (which I don't have), and 2)I've lost his information AND the referral.
My family thinks it's not even worth talking with this guy if the insert is going to cost more than I have....(or can sweet-talk my way into!)
I have Medicaid/care and I think it'd be at least PARTIALLY covered, right? The main thing is to keep from isolating (thanks, Jennifer) and feeling "less than"


SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!