Surgery last June left me without more than 1/2 my tongue. Not being able to be understood clearly and slobbering/spitting all over when I try is truly the most challenging aspect of this whole experience (so far). I don't seem to be able to swallow all my saliva (still have good "flow" even after rad) and have to "slurp" constantly (or SPIT) Is there any kind of prophyllactic (sp?) that can help? I find it helps if I hold my head back when I speak, but it's not very practical. Still in the game-but kindof losing the initiative to participate with "normal" folks.....
Also tend to choke fairly regularly-NOT something you want to do in public


SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!