Thanks for posting this for us. I have no words that are close to what I think but do have you in this guys prayers. Have you tried to type what you are looking in the internet search? That is how I found OCF in march of 2007. Get another opinion from a bigger Hospital. Please!!

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here