Update: Alex went ahead with injections once a fortnight. Alex is due for his third injection next Tuesday. We were told there would be no real effect for the first few weeks so not to get discouraged if nothing happened.

The night before last, I asked Alex to weigh himself, although neither of us expected any weight change. 61.2kgs (134.9lbs)!!! I knew something good had happened when he got quietly off the scales and took his pants off before getting on again. He has been stuck round 58-60kgs (128-132lbs) since July when he recovered from 48kgs. He was 58.8 (129.6)when we began the injections 5 weeks ago which means he has gained 2.4kgs (5.3lbs). But the best thing is the mood improvement and the will to try. He was literally bouncing all over the place last Saturday night when he managed to eat 2 baby dim sims without ill effects, and then announced he was walking home he felt so good. We still have some way to go but this is a very exciting development.

Eric, we won't make your 50 lbs on the doses we are on but Alex is very happy nonetheless. Also gratified to be experiencing only positive side effects so far