Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Barb, I know it is easy to give advice but hard to follow it when it is given you you. Geez, I have no words right now that would express my thoughts and feelings, I just want you to know you have thousands of us on your side. If you feel up to talking, My long distance calls are free, IM your phone number if you want and I will call you then hope you can understand my "unique" language.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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