Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Thanks David, I forgot to mention Ativan - I took that also but mainly as an anti nausea med and also Compazine suppositories when I was throwing everything else up before it could take effect. The doctor also recommended placing an Ativan in the suppository as well.
I also took Vicodin until I discovered that the acetomeniphen in it is a liver killer (I also have Hep C - not discovered until my blood tests at the CCC - oh happy day!). UCSFCCC, protocol, is for all H&N patients to be tested for hepatitus antibodies.
I forgot to mention 'Desonide" cream for itching. NEVER scratch the irradiated skin area during or immediately after Tx.
I also had occasional bouts with chronic hiccups that really sucked. You'll just have to take that as it comes (if it does). Strangely, they would stop while I was eating then immediately resume afterwards.
Be aware that I didn't use a PEG so that complicated many things during and post Tx.
You'll also want a "cold humidifier". Vortex makes the one that I used (and still use).
Many have also recommened "Puffs" facial tissues as they hold together better than other brands. You'll need them for hacking up the stringy mucous that occurs later on in Tx.
You already know about dental trays - I also use a flouride foam, pH neutral, Oral B .9% - it is presciption so you'll want to have your dentist order some.
I started on the patch about 3-4 weeks into Tx and stayed on it until about 3 weeks post Tx. I was weaned off over a month time period to minimize withdrawal.
The radiation fried my neck muscles, so today I take Valium and an occasional Codiene for the pain and/or spasms, as needed. It's not all of the time.
Your pain threshold should never exceed a "3" - always use the number system when describing your pain levels to the clinicians.
Your immune system will crash so make sure that your environment is as clean and disinfected as possible, keep waterless hand cleaner with you, wear gloves when touching anything the public touches, ATM keypads, gas pumps, door knobs, shopping carts, etc. and never get within 25" of a sick person.
Last edited by Gary; 01-06-2011 12:52 PM.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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