I may be facing this- my cancer is extremely aggressive and just keeps popping back up like those damn weebles I used to punch as a kid.
My surgeon told me today that now I have a suspicious spot on the right side of my tongue (to date everything has been on the left side) and that if it comes back positive that I may have to have my tongue removed. I am fully expecting for the tests to come back positive with my history over the last year. And if I have my tongue removed, what kind of life will I have? would I even want to live it? Please oh please- if anyone has had something this dramatic, I need to know. I have a couple of weeks before I leave for Seattle for surgery on my neck and perhaps the tongue if it is back. Anything you can tell me will be great.


Lisa from Montana
40 years old
squamous cell-left lateral tongue & lymph with free flap skin graft and re-section,
PEG tube,
Total Glossectomy without Laryngotomy April 2011
Still mouthy as hell
plenty of war wounds
craving a cheeseburger

***10/14/11 UPDATE--Lisa has passed away