I know the feeling. Hopefully you will find a good new one soon, or maybe this one will pull his head out of his butt and do what you want/need them to do for you to make this as easy as possible for you.

One of my doctors that did my reconstructive surgery had really bad bedside manor, he would walk in, say what he had to say, and walk out without seeing if i had any questions or concerns. I talked to my main oral surgeon, the one who is my primary cancer doc, and he talked to the other doc for me, and after that, it went a lot better. I talked to his nurses cuz they came to talk to me, and they say he just hates to see people so young, and gets attached emotionally sometimes, so they say that is his way of trying not to incase things go wrong. But they also said once he sees that things turn around for them, he has much better bedside manner and i see that now that i am not battling right now and am "in the clear", he seems a lot more easy going, and not so i am doctor, book smart, but not worldly or people friendly, lol.

Either way i hope your situation gets a little better. I would hate to go through this without a doc I trust and respect and feel good in knowing that they are going to help me beat this!

If it is caused by HPV, there are tests they can do to see, it usually is less likely to come back as long as they got it all in the first place, and you don't keep doing things that will keep introducing HPV.

I wish you luck with this, keep fighting and stay strong!


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010