Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Everyone goes at their own pace and experiences things in their own unique way. We all recover differently and react to procedures and medications differently. Its no walk in the park but you can do this!!!! Nobody can really answer your questions about how much worse it gets. If your pain is under control then it isnt that bad. Ive been thru much worse and Im wimpy!
I dont know what the ulcer rinse medication is. The yeast infection medication is for thrush. Maybe you have that??? Is your mouth all white? Thrush is fairly common with oral cancer patients. Anyway, here we are all patients and/or caregivers but we know ALOT about oral cancer. So if you use the medication names we usually will know what you were given. I cant believe they told you to take tylenol. I think I started the patch when I was about the 2 or 3 week point.
Never give up!!!! It is very very important that you go to your radiation treatments and finish. So tell us more about what is going on with your oral cancer....
Where exactly is your cancer? How old are you? Where are you being treated in NY? (There are some top cancer hospitals there) Did you have any surgery? Do you have a caregiver? If not, do you have friends/family to help you? Do you have a feeding tube?
Sorry for all the questions, it will help us to answer your questions and to help you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |