Thanks everyone! Will look into second opinion from another CCC. I was referred to the Cancer Center of the Carolina's by my oral surgeon who performed initial biopsy. They ordered the PET aned CT scans and referred me to the ENT who performed the second excision. Wishing to be proactive (not necessarily meaning wanting more surgery) I asked my ENT if he knew of any studies that were ongoing and of interest. He contacted Dr. Bruce Neville, an oral pathologist at MUSC. Dr. Neville and Dr. Day cowrote a paper, "Oral Cancer and Precancerous Lesions" which was published in CA-A Cancer Journal for Clinicians in July/Aug 2002. Dr. Day is suggesting I need more surgery based on path results from 2nd excision. They are also suggesting herbatox (sp?) as a possible substitute for surgery. I go for a more detailed consult on Jan. 3, 2011.

Does anyone here have any information or experience with herbatox?

Thanks again for all your uplifting words.
Merry Christmas!!

Catherine, SCC floor of mouth DX 2010,unclear margins, PET scan clear, no chemo or rad,biopsy in 9/2010, 2nd excision 10/2010 didn't get all carcinoma in situ; partial gloss & excis. right floor 2/2/2011 margins clear. Part.gloss-10/5/2011 sev dys clean marg. HPV neg. Don't smoke or drink. SCC floor of mouth left side 4/2016. Dysp excis. rt palate 7/2017 Part gloss sev dys lat marg 2/2019 Part gloss free flap rt neck disc 5/2020 Part gloss bilat neck disc 7/2020 33 rad 3 cis.