Do you have a tray for the fluoride? Use it every night if you can. I am almost 5 years post Tx and I still use mine.

Saliva products won't be used till the end of Tx. If you are like the majority of us you won't start to feel the bad effects from the rad until around your 4th week and it can last until around the 3rd week post Tx. Some are worse and some hardly have any problems.

Watch out for Erbitux's bad skin reactions.

Doing this alone, I mean without someone there living with you, will be tough so make sure someone in your support group is available 24/7 until at least from the 4th week thru the 3rd week post Tx. Of course we are going to be with you 24/7 so use this site as often as you wish.

As you start to loose your taste you may crave something but don't go out and buy more than one until you taste it. Your brain will constantly tell you what something will taste like from memory until your wounded taste buds say otherwise!

Without a PEG you will likely face many challenges in maintaining your caloric and hydration goals which should be appx 2500 cals and 48 oz of water EACH AND EVERY DAY.
Check into Carnation Instant Breakfast VHC which has a whopping 560 calories in a 8oz can. You don't need a prescrip but it must be ordered from a pharmacy like Walgreens, CVS or over the internet. With the VHC you only need to swallow 5 of those cans a day and believe me you may find that even 5 can be very difficult to do later on in the Tx. Also don't forget the water. That's in addition to anything else you put into your mouth. I drank that VHC stuff into my 2nd year of recovery.

Eat all your favorite foods now. Don't worry about fat or calories. In fact the more the better as far as I'm concerned. You will likely loose some weight. In fact this Tx is the BEST weight lost program out there but I only recommend it to a very special few!

Post often. We can be invaluable to you for years to come.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.