My thoughts exactly Christine. Thanks Gabriele looking forward to your PM.

After my first major surgery, everything was going very well. The result was first class and the team was 'terrific'. After radiotherapy and chemo, when things began to go belly up, they started to duck for cover. Their attitudes changed dramatically.

I've since taken my concerns to the CEO of the hospital, and also to the Chairman of the Board of Directors of the appropriate hospital system (who I used to work with). I hoped by taking the matter further and sharing my experience with them, they would work to improve their systems, and avoid others having to deal with some of the difficulties I was continually faced with.

The result has been positive. I received correspondence earlier this month from the CEO of the Health services system which covers several hospitals in the western health system. (5 or 6 hospitals both public and private) They have now created and appointed Nurse Liaison Officer for patients with ongoing Plastic and reconstructive surgery issues like me. It's a great start. I'll keep lobbying, there's LOTS of work that needs to be done for oral cancer patients.

Once my facial appearance is sorted, my next 'mission' is to ask the Plastic Surgeon if there is any way she's able to improve the tongue flap mobility I have. Hmmm.....I sure hope so.

Karen