 "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hello and welcome to OCF from another Aussie.
You will find that this is the best place to seek information and advice. I would suggest that you look up another user here from Melbourne Karen Rose. While Karen's situation is not the same as yours she may be able to help with Specialists and Hospitals in Melb. Victoria. Look under User List (3rd tab at the top)and send a PM (personal message). I will email Karen now with a link to your post.
If you have any more questions ask away. You already have some good advice and I wish you all the very best.
Cheers
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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