Hi Una - real sorry to hear about your situation. I am 2.5 years with a PEG and no food. My doctor was less than optimistic about me being able to swallow. I found Vital Stim therapy at a local therapy facility. The therapists have helped me be able to drink thin liquids again. They use the Vital Stim machine, myofacial release/massage, and the standard and non-standard exercises. I am not optimistic about real food but being able to drink has helped me start exercising again. Let me know if you would like more details.
mark

11/1999 SCC tongue - surgery
1/2000 Met(s) in lymph nodes - modRND
2/2000-4/2000 RT ~6 weeks
end of 2006 SCC tongue - surgery
1/2008 SCC BOT - surgery / PEG installed
2/2008 chemo & RT
4/2008 last time I consumed solid food by mouth