Hello all, it has been a while since I last posted, but have had a rather busy time. I am still having much pain in my mouth jaw and neck, the tongue or what is left of it still burns constantly, I am on Fentanyl 100microgram patches plus liquid ordine for breakthrough?? pain and other meds to help with other things that have occurred as a result of my treatment. I have been told that the pain will probably be with me for years as it seems my chin bone has not come together as it should have but as far as the rest of the pain goes there are no answers. I am having another MRI soon aas my voice has become very croaky and I sill have great difficulty swallowing (I still have my peg).


Many thanks for listening,

Margie

SCC Base of tongue stage 4. 10 hour operation Radical neck dissection and hemiglossectomy 23/10/06 35 Rad treatments and 3 high dose Cistplatin Dec 06 - Feb 07. Ex casual smoker 6 to 8 a day - casual drinker. Very fit and diet conscious.