Hi Jo- Sorry you are going through all this! I am also an ICU nurse in an adult med-surg unit. We don't see much of this at all in our unit, though, unless the patient is there for some other problem. I certainly don't blame you for not wanting the radiation-- thank goodness your CA is low grade! I'm not familiar with your type of cancer. I have high grade mucoepidermoid CA. My case has been discussed by two different tumor boards-- one at Shands Jax and one at Moffitt Cancer Center, where I opted to have my surgery. Even though I am apparently stage 1, because MEC is so agressive and mine was high grade, both tumor boards recommended radiation for me. I have to admit I dread it, but I don't feel it would be wise not to do it. Since you are at a CCC, I'd wait and see what the full tumor board has to say about it and go with that. How fortunate you are that your surgeon has dealt with so much of your type of cancer!!

Good luck to you!


Susan
Age 51, married with four kids age 11-18, 9/1/2010, Bx: high grade mucoepidermoid CA left sublingual gland.
10/8/2010, wide excision left floor of mouth, modified radical node dissection left neck.
T1N0M0. IMRT started 11/22.
Never smoked, light social drinker
Also happen to be ICU RN