 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | MammaMinnie and the Girls!
All of you have been an inspiration to me and when I search for more service opportunities I often think of each and every one of you. Your family is the epitome of what we are all trying to do and just like Jesus tried to teach me, I have fallen so short in so many ways.
I have shared your stories over the past 4 years with so many people and you have now given me yet another chapter that tells the story of sacrifice, love and bringing honor and glory to His kingdom and in a glorious way.
It is and has always been an honor to say I know you! May your miracles be abundant and may the blessings continue now and forever. I truly know you are Christians by your love.
Now, go and get some more national publicity so these insurance companies won't take advantage of all of us oral cancer patients. I am so tired of hearing the excuses and fighting every step of the way. I didn't ask for any of this but we all need a little help from the insurance companies.
You go girls!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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