Senior Member (100+ posts) Joined: Sep 2009 Posts: 177 | Hi Matt, For me it has taken quite awhile for my tongue mobility to come back, I have actually had 2 more surgery's trying to gain more. The first one they clip the area that was grown down to the floor/left side of my mouth. Unfortunately that grew back down. This last surgery the essentialy re-clipped and place a skin graf under my tongue. I think it is better, I can touch the roof of my mouth with my tongue now. First time in almost a year. but I still can't stick my tongue out. I have finally realized they took more than 50% of my tongue and I will never speak perfectly again. I mostly struggle with th's and l's that are toward the end of a word or when an l is with certain other contsanants. I am a help desk support person and most of my job is speaking with my customers, but they seem to understand me fairly well and for the most part people understand and are patient with my speech difficulty's.
My loss of speech has been the most difficult part of this for me. But I am beginning to appreciate being alive and being grateful that so far the cancer has not returned. It was hard for me to find information about these particular difficulties, so if you have more questions don't hesitate to ask. It sounds like maybe we can relate a little.
I get sad, becouse I use to love to have long deep meaningful/ and meaningless conversations and now its just to much work to have alot of extra verbal communication. So now I would rather sit and listen to others conversations and not give much input. I still think things I would like to say, but its just not worth the work somethimes.
Wendy 46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
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